Quality of Life After Spinal Cord Injury: Navigating to New Normal

Spinal cord injury is a life-altering event, often causing profound changes not only physically but also emotionally and socially. The impact on quality of life varies significantly among individuals based on different factors like level and severity of injury, one’s mental endurance and access to rehabilitation.

Despite these challenges, many people with SCI find ways to adapt, thrive, and redefine their quality of life. This blog explores the factors that contribute to quality of life after SCI and offers insights into how individuals can navigate their new normal.

Factors that Affect Quality of Life Post SCI

A lot of people are not aware about SCI and how it affects the quality of life. But as soon as they return from hospital and try to get back to their normal life they realize the impact . Although you can move on with life and improve the quality of life with the help of rehabilitation.

We will walk you through some of the factors that can effect quality of life after SCI:

• Immobility and dependency
  
  Lack of mobility is one of the most immediate concerns after an SCI. The extent of mobility loss depends on the level and completeness of the injury. While some individuals may regain partial function, with the help of rehabilitation protocol but others may face permanent paralysis.
  
  Rehabilitation plays a crucial role in maximizing independence. Physical therapy, occupational therapy, and adaptive tools, such as wheelchairs and assistive devices, can help individuals regain as much independence as possible.
• Secondary Health Conditions
  
  SCI comes with many complications such as pressure sores, pain, respiratory issues, and spasticity. They can also affect the quality of life if not managed properly.
• Emotional and Psychological Impact
  
  The emotional and psychological impact of SCI cannot be underestimated. Individuals may experience a range of emotions, including grief, anger, depression, and anxiety. Adjusting to a new life and coping with the loss of previous abilities can be depressing. Psychological support, including counseling and support groups, is essential for helping individuals process these emotions and develop healthy coping strategies.
• Social Connections and Relationships
  
  SCI can strain social connections and relationships. Some individuals may distance themselves due to feelings of embarrassment, dependency, or fear of being a burden. However, maintaining strong social connections is crucial for overall well-being. Friends, family, and support groups can provide emotional support, practical assistance, and a sense of belonging.
• Access to Resources and Support
  
  Access to resources, including healthcare, rehabilitation, financial support, and community services, significantly impacts quality of life. In some regions, individuals with SCI may face barriers to accessing these resources due to economic, geographical, or systemic factors.
• Reinventing Identity and Purpose
  
  One of the most profound aspects of life after SCI is the process of reinventing one’s identity and purpose. Before the injury, individuals may have defined themselves by their career, hobbies, or physical abilities. Post-injury, they may need to rediscover who they are and what gives their life meaning. This process involves exploring new interests, setting new goals, and redefining success.
• Moving on with life
  
  Post-injury many individuals find it difficult to accept their fate and move on with their life. They start giving up on everything and grow a sense of hopelessness which can impact the quality of life.

Ways to Improve Quality of Life Post SCI

SCI comes with so many challenges and complications but with right strategies and resources one can enhance their quality of life
Below, we’ll discuss several tips to promote a better quality of life after SCI.

• Engage in Rehabilitation and Physical Therapy
  
  Engaging in rehabilitative therapies such as physiotherapy, hydrotherapy, etc. can significantly improve the quality of life post SCI. It can help in gaining the mobility and maximize independency.
  
  A physical therapist will assess your abilities and create a custom exercise plan to improve strength and motor control.  They can help you regain the mobility with the help of neuroplasticity.
• Adopt Adaptive Tools and Adaptive Equipment
  
  Advancements in assistive technology have opened up new possibilities for people with SCI. From power wheelchairs and modified vehicles to voice-activated devices and smart home systems, technology can help increase independence and ease daily tasks.
  
  Adaptive equipment, such as specially designed utensils, bathroom aids, and mobility devices, can also make a significant difference in daily living. These tools can help reduce reliance on others, and enable individuals to engage in activities they enjoy.
• Focus on Mental and Emotional Health
  
  SCI can take a toll on mental and emotional health. Seeking psychological support, whether through counseling, therapy, or support groups, is crucial. Talking about feelings and challenges with a mental health professional can help process the emotional impact of SCI, develop coping strategies, and manage conditions like depression and anxiety.
  
  Mindfulness practices, such as meditation and breathing exercises, can also be beneficial in reducing stress and promoting emotional well-being. Staying connected with loved ones and participating in social activities, even if it’s online, can help combat feelings of isolation and boost overall morale.
• Stay Connected with Social and Peer Support
  
  Building and maintaining a strong support network is vital after an SCI. Connecting with others who have similar experiences through support groups, online forums, or local organizations can provide a sense of belonging. Additionally, Peer support can provide emotional comfort, and inspiration from those who have successfully navigated life after SCI.
  
  It’s also important to nurture relationships with family and friends. Open and honest conversations about needs, limitations, and feelings can help prevent misunderstandings and build stronger, more supportive relationships.
• Explore New Hobbies and Interests
  
  One way to improve quality of life post-SCI is by exploring new hobbies and interests. Adaptive sports, art, music, and other creative outlets can provide a sense of purpose, joy, and accomplishment.
  
  Pursuing new hobbies can also lead to social connections, helping to build a community of people with similar interests. Engaging in activities that bring joy and fulfillment can significantly enhance mental and emotional well-being.
• Pursue Education and Career Opportunities
  
  Continuing education or pursuing career opportunities can provide a sense of purpose and financial independence. Many people with SCI return to work or school, sometimes in a new field that accommodates their physical abilities. Online education and remote work options have expanded access to these opportunities.
• Travelling
  
  Travelling after a Spinal Cord Injury might seem scary, but it’s entirely possible with the right preparation and mindset. Exploring new places and making memories shouldn’t be limited by spinal cord injury. With few essential tips and a bit of planning, traveling can be enjoyable and fulfilling for individuals with SCI.

Conclusion

Life after a spinal cord injury may come with significant changes and challenges, but it also offers opportunities for growth, connection, and redefining what quality of life means. By focusing on physical health, emotional well-being, social connections, access to resources, and personal purpose, individuals can create a fulfilling and meaningful life despite the hurdles.